2008-10-29

sweet poem about the emotional journey

This poem is pretty bang-on. My wife received it at an allergy support group meeting a while back, I just stumbled upon it myself tonight. Of course I googled it, and support groups for parents of kids with all types of disabilities everywhere in the english-speaking world use it. No surprise there.
Ironic thing is that I have visited family in Holland many times, and we visited Italy when only 3mos pregnant with our child.
Welcome to Holland - Emily Perl Kingsley
I am often asked to describe the experience of raising a child with a disability to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this ...

When you're going to have a baby, it's like planning a fabulous vacation trip … to Italy. You can buy a bunch of guidebooks and make your wonderful plans. The Colosseum the Michelangelo David, the gondolas in Venice. You may learn some handy phrases in Italian. Its all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes and says "Welcome to Holland.”

“Holland?!?” you say. “What do you mean, Holland? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is they haven't taken you to a horrible, disgusting, filthy place full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guidebooks. And you must learn a new language and you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around, and you begin to notice that Holland has windmills. Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy and they're all bragging about what a wonderful time they had there. And the rest of your life, you will say "Yes that's where I was supposed to go. That's what I planned".

And the pain of that will never, ever, ever go away, because the loss of that dream is a very significant loss.

But if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things about Holland.

2008-10-26

birthday parties

preparing safe food for them is going to be a lot of work...
Anyway, he kept playing in the living room while the other 3yos smooshed their food everywhere at/around the table, then he popped over in time for dessert (special chocolate cupcake with Dairy Free ice cream). All in all worked out quite well!

2008-10-24

blue menu all beef sausages update

Frederic just called re blue menu sausages inquiry from June.
Going through cases not closed yet; was apologetic about delay. The top 10 allergens were not in the product, line nor plant. Previous product made was "Frankfurters in a skin." He'll reissue a request to confirm legumes, lamb and gelatin.